
When you hear the words Persistent Genital Arousal Disorder, the first reaction is often a smirk. But the women and men who actually live with it will tell you there’s nothing funny about being trapped in constant, unwanted arousal.
Take the story of Scarlet Kaitlin Wallen, a 21-year-old part-time art student and courier from Barrington, Rhode Island, who spoke to SWNS via the New York Post. She said she has lived with painful “pins and needles” in her genitals for as long as she can remember.
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“I’d been experiencing pain for as long as I remember,” she explained. “My vulva was constantly burning — it was like I was naturally aroused but I didn’t want it.”
Doctors eventually discovered that Wallen had a duplicated vaginal wall, sometimes described as a “duplicate” vagina.
The diagnosis came only after years of confusion and mounting distress. She underwent surgery to remove some of the tissue and later had a vestibulectomy, but the condition never fully went away.
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Her disorder, Persistent Genital Arousal Disorder, is rare enough that the Cleveland Clinic estimates it affects about one percent of women.
The clinic describes PGAD as “unpredictable, uncontrollable physical sensations associated with sexual arousal — but in the absence of desire.” Importantly, the sensations don’t resolve with orgasm, and patients say they bring no pleasure.
Wallen put it another way: “It feels like burning bugs under my skin. There’s nerve pain, it’s not wanted — and there’s no pleasure. I’m hopeful I’ll be able to have a painless sexual relationship in my lifetime.”
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At one point she grew so desperate for relief that she turned to vapor rub, a menthol ointment meant for chest congestion. She applied it directly to her genitals just to change the sensation.
“At least if it wasn’t treating me, the pain I’d get from it was distracting,” she said. “I wanted my genitals to burn from that, rather than the PGAD.”
Another case is Dale Decker, a 37-year-old father from Two Rivers, Wisconsin, who spoke openly about living with the same condition. In interviews with CBS Chicago and Barcroft Media, he said what might sound like a fantasy to some has been nothing short of a nightmare.
Decker developed PGAD in 2012 after slipping a disc in his back. On the way to the hospital, he said he had five orgasms in the car. From that day on, they never stopped. He now suffers up to 100 a day.

“There’s nothing pleasurable about it, because even though it might physically feel good, the whole time inside your mind, you’re completely disgusted by what’s going on,” Decker explained.
“Depending on where you’re at, if you’re in public, if you’re in front of kids, if you’re around strangers, I mean it can make a person break real fast.”
The most haunting moment of all came at his father’s funeral. “When you’re on your knees at your father’s funeral at his casket, and you’re saying goodbye to him, and then you have nine orgasms right there while your whole family is standing behind you, you never want to have another orgasm as long as you live. But you know what? They just keep on coming.”
The condition has kept him housebound, unable to work, and terrified of going out in public. He told reporters he lives in constant fear of breaking down in front of strangers, or worse, in front of children.
Another case is Emily McMahon, a 36-year-old from Melbourne, Australia, who told The Sun that she climaxes in public at least five times a day. Diagnosed nine years ago, she said the condition “hit out of nowhere” and left her in a permanent state of arousal.
“It’s 24/7 arousal – but it’s uncomfortable,” Emily explained. “I get a sharp pain in my groin and it’s constantly burning.” She described the attacks as more like seizures than pleasure.

Doctors first suspected a cyst, but later discovered nerve damage was behind her symptoms. Medication helps dull the sensations, but she still experiences up to five painful orgasms every day, often while riding public transport.
“People were looking and judging as I tried to deal with the physical effects,” she recalled.
Her family did not always understand. “They told me to masturbate, saying I should be happy to feel like this 24/7,” Emily said.
In reality, sex is painful and intimacy remains difficult. She is in a long-distance relationship, but worries constantly about how PGAD will shape her future.
The condition has also influenced her decision not to have children. She fears PGAD could be hereditary and says she could not bear the idea of passing it on.

“No one deserves to suffer like this,” Emily said. “When people laugh or say that it’s not real, they have no idea how it affects me.”
A surgical option exists in the United States, but it is far beyond what she can afford. “Doctors need to do more research to understand the condition and help people,” she added.
This is the part nobody laughs at.